Author: Melissa

Lily’s team was just here to do rounds. Dr. Sponseller seemed very pleased with how she is doing and said she can move to the step-down unit today as soon as they can have a room ready!! Yay Lily!!

She had an OK night. The nurse increased her pain meds just a bit and put them on continuous delivery because we agreed that she was uncomfortable. However, everything else looks great, so we are being kicked out of PICU!! 🙂

I stayed with Lily last night and it was a rough night for me. The couch I slept on was sooooo uncomfortable! Todd and I will be trading off later this morning and I’ll go back to RMH to sleep. In a bed. 🙂

One last post before I officially collapse for the night. Lily is doing fine in the PICU. She is on a steady but small dose of hydromorphone for pain. She is also receiving Tylenol intermittently. Her nurse came in a little while ago and said she has no movement restrictions so PT and OT will probably be here tomorrow to get her up in her chair and maybe do some other work with her. She also said they expect her to “fly out of here” to the PACU by sometime tomorrow. This is all great news!
Todd and I got to go out for a quick dinner after we checked into the RMH. We ate at this great place called Ale Mary’s and it was just what we needed. It was good to get out of the hospital after a very long day.

I am spending the night here. I wish more than anything that I could snuggle up in bed next to Lily, but she has so many tubes and wires attached to her at the moment. I want to make everything all better and comfort her. All I can do is sit by her side and rub her head. She is so tough and brave and I love her so much!!

Thank you all for the prayers, love, and support today. It means the world to is to know we are being lifted up on your prayers. God is gracious and answered our prayers for a smooth surgery and best possible outcome. I thank him for giving me the strength to make it through the day.

Until tomorrow–goodnight from Lily and me!!

We just saw Lily for the first time. She looks pretty good, considering. Her face is swollen from having been face down for 5 1/2 hours. Poor baby looks like she was in a fight–but you should see the other guy! Ha! She is still groggy but was awake a little bit. She is the toughest, most badass chick ever. I cannot believe how much she has been through but still has fight left.

She will most likely remain in PICU for 24 hours, then can go to the step down unit after that if she’s doing well. I am going to spend the night in her room tonight. We did get a room at the Ronald McDonald House so Todd is going to go there tonight and get some sleep. I may go over there tomorrow during the day and get some sleep also.

Thanks again for your prayers and support!! We will continue to update!

 The surgeon just came out and said Lily is out of surgery and everything went very well and there were no complications. Praise God! We are still waiting to go back to be with her. Thank you all for your prayers throughout today. We will update later after we get to see her. Much much love from us.

So…to pass the time and keep from freaking out, I created a playlist of some songs that I love and that I thought would encourage me and help me trust and have faith. Here are some of the songs:

Always–Kristian Stanfill
None But Jesus–Brooke Fraser
Blessed be Your Name–Matt Redman
Take Heart–Hillsong United
Sovereign–Chris Tomlin
Came to My Rescue–Hillsong United
10,000 Reasons—Matt Redman
You Never Let Go–Matt Redman
Aftermath–Hillsong United
Oceans–Hillsong United
In Christ Alone–Kristian Stanfill
Desert Song–Brooke Fraser
With Everything–Hillsong United
Broken Vessels–Hillsong Worship
I am Not Alone-Kari Jobe (I played this for Lily before her surgery)

We are at the hospital and checked in. Just waiting to be called back.